Recently I have become very aware of autism as an identity rather than a disorder. From speaking with autistic people and reading their blogs, taking note of the rejection of person-first terminology ("a person with autism") and the preference for identity-first wording ("an autistic person"); the posts listing "that autistic feeling when..."; the visual stim... Continue Reading →
Today (April 2nd) is World Autism Awareness Day. The entire month of April is Autism Awareness Month. Autism blogs are already awash with articles on the awareness/acceptance argument, the evils of Autism Speaks, the tokenism of one day out of 365 and one month out of twelve for building awareness and the pointlessness of blue light... Continue Reading →
Too important not to share. There is a huge difference between being aware of autism and making autistic people's lives better, making accommodations, allowing them to speak on their own behalf, not trying to force them to behave in a neurotypical/allistic way and shaming them for behaving autistically. Listen to the autistic community, find out... Continue Reading →
via Sesame Street welcomes Julia, a muppet with autism - BBC News Sesame Street has created Julia, a muppet who has autism. It's wonderful that a programme so involved with early years children is raising this issue. Interesting that they've gone with a girl as far fewer girls are diagnosed. However, I've read a number of... Continue Reading →
Parenting an autistic child when you have no previous experience of autism can be confusing, stressful, tiring and lonely as there are few chances to talk to people who understand what this life is like. It drove me to create this blog, so I could share what I have learned and help others who may... Continue Reading →
Change is coming. The prospect of change is beginning to cast a shadow on our family's life: my son is moving up to High School in September. Thomas has high functioning autism so he is generally resistant to change; his primary school and I have spent some time preparing him for this next step. We've talked about it,... Continue Reading →
I began this blog with a desire to depict in some small way the experience of living with autism in the family. I wanted to convey some of the emotions we felt as parents of a child with special needs; the challenges, frustrations and fears of living with something that we have no experience of... Continue Reading →
A very insightful and helpful perspective. My first reblog.
I left Facebook a while ago because I kept getting sucked into the arguments between parents and Autistic people, Autistic people and the anti-VAX movement, and medical professionals and Autistic people. Today I logged back in and was quickly reminded why I left.
The first thing thing that upsets me is that all of these people think they know more about Autism than Autistic people, as if our first hand experiences are of little or no value. This is often parents but can also be medical professionals and organic health nuts (I eat organic but these people are extreme).
Cure culture fanatics telling us we are sick for wanting to stay Autistic – sick for wanting to stay the way we were born. Parents telling us we don’t understand because we are not like their child (some of us WERE at one point and have worked hard to improve as…
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Thomas received his cycling certificate today. Another certificate for the Wall of Fame in the Room of Heroism. Yes, he really calls his bedroom the Room of Heroism. This is a new thing; he invented the name last week after he went to the Dental Hospital. That evening he brought his toys downstairs to award... Continue Reading →